Opublikowany: 09/02/2023

Webinaria ERN-RND 2023


European Reference Network for Rare Neurological Diseases (ERN-RND) zaprasza do zapoznania się z nowym programem darmowych webinariów w 2023 r., przygotowywanych we współpracy z Euro-NMD oraz European Academy of Neurology (EAN).

Webinaria mają charakter edukacyjny i dotyczyć będą następujących zagadnień:

- Rzadkie zaburzenia neurologiczne, nerwowo-mięśniowe i ruchowe

- Neurorehabilitacja

- Terapie zaawansowane

- Badania kliniczne



ERN-RND Webinars 2023:

07.03.2023, 3-4 pm CET ‘Towards precision medicine in NBIA’ by Manju Kurian, GOS Institute of Child Health, University College London, UK. SIGN UP here

14.03.2023, 3-4 pm CET ‘FTD- in whom, when and how genetic testing should be applied’ by Laura Donker Kaat, Erasmus Medical Center Rotterdam, Netherlands. SIGN UP here

09.05.2023, 3-4 pm CET ‘Non-pharmacological approaches to treatment in svPPA’ by Ana Sofia Costa, RWTH-University Hospital Aachen, Germany. SIGN UP here

23.05.2023, 3-4 pm CET ‘Frontotemporal dementia vs. primary psychiatric disorders’ by Tim van Langenhove, University Hospital Ghent, Belgium. SIGN UP here

20.06.2023, 3-4 pm CET ‘Haematopoietic Stem Cell Transplantion in Leukodystrophies’ by Jörn-Sven Kühl, University Hospital Leipzig, Germany. SIGN UP here

27.06.2023, 3-4 pm CET ‘Huntington disease: new insights into molecular pathogenesis and therapeutic opportunities’ by Sarah Tabrizi, UCL Queen Square Institute of Neurology, London, UK. SIGN UP here

12.09.2023, 3-4 pm CET ‘Friedreich Ataxia’ by Kathrin Reetz, RWTH-University Hospital Aachen, Germany. SIGN UP here

26.09.2023, 3-4 pm CET ‘Neuropsychological assessment in primary progressive aphasia – recommendations and pitfalls in clinical practice’ by Lize Jiskoot, Erasmus Medical Center Rotterdam, Netherlands. SIGN UP here

10.10.2023, 3-4 pm CET ‘Advanced therapies and clinical trials in leukodystrophies’ by Caroline Sevin, University Hospital Bicêtre, Paris, France & Nicole Wolf, VUMC- Amsterdam University Medical Centers, Netherlands. SIGN UP here

24.10.2023, 3-4 pm CET ‘Newborn screening in leukodystrophies’ by Lucia Laugwitz, University Hospital Tübingen, Germany. SIGN UP here

14.11.2023, 3-4 pm CET ‘Diagnostic workup and prognostic implication for sleep disorders in atypical parkinsonisms' by Giovanna Calandra Buonaura, University of Bologna, IRCCS- Institute of Neurological Sciences, Bologna, Italy. SIGN UP here

05.12.2023, 3-4 pm CET| ‘Diagnostic workup for genito-urinary dysfunctions in atypical parkinsonism' by Pietro Guaraldi, Azienda USL di Bologna, IRCCS Institute of Neurological Sciences, Bologna, Italy. SIGN UP here


Since the start there is a great interest for the webinars - we have on average 100 attendees per webinar from all over the world. They always take place on a Tuesday from 3-4 pm CET.

By sharing the knowledge from European and international experts we aim to increase and improve the expertise of clinicians involved in care of rare neurological diseases patients.

Important websites:

Past webinars: https://www.ern-rnd.eu/education-training/past-webinars/

Upcoming webinars: https://www.ern-rnd.eu/education-training/webinars/

We are also pleased to announce the 4th ERN-RND Winter School on 'Neuroimaging. ‘ It will be held online from 23.-25. March 2023. For more information and to register please visit: